I have been trying to get a handle on how I feel about everything and it is not easy. When we first were diagnosed, it was simple to grasp what we were feeling - shock, sadness, numb, overwhelmed. But one can't stay at that level of emotion and so as time passes a certain normality settles into our lives. With that new normal comes a sense of confusion. Yes, I am still in shock, but I am gradually getting used to the idea that I have a dreadful disease. Yes, I am overwhelmed, but I still must do what I can to keep things going. Bills need to be paid, Christmas gifts need to be wrapped (though I have declared this year a "no bow" Christmas - paper only), and decisions need to be made. Thankfully everyone is home now to help with all the chores - I have done very little in that department. Yes, I am still sad, but I cannot continually cry or yearn for what life was just a month ago. As I heard in church yesterday, I must find joy within my sorrow. Joy is there! I believe this is a huge gift from God that in the midst of the chaos that is now my life, I can still feel and take incredible joy in the things that have always brought me joy.
Another thing that is real confusing about this disease is the chemo. Wow! I have been trying to find the words to describe how it makes me feel physically. I remember when my mom was getting chemo she hated the way it felt when the medicine went into her body. I don't mind that so much but it seems to me, by the end of the day, I can smell the chemo seeping out of my pores to the point where I can hardly stand it. Russ assures me I don't smell like poison but I don't know.... Since I was in grade school I have had the onus of bumpy, scaly skin on the back of my arms. Since my first chemo treatment - Gone. Smooth as silk. What's up with that? I have lost the weight that I have wanted to lose for the last couple of years but instead of being happy about that I'm trying to bulk up not wanting to become too gaunt and skinny. And of course the nausea always seems to be lurking around the corner, jumping out to surprise me when I least expect it or when I'm not ready for it. Thankfully, the anti-nausea pills work wonders. But is the chemo working? I really have no way of knowing until a pet scan is done again in a few weeks. So in the meantime, I am praying that the chemo is doing its job and that the cancer cells are being killed off, and that I am on the way to healing.
I remember a woman telling me several years ago after her husband had been diagnosed with cancer that it was a series of hurry up and wait, hurry up and wait. That is so true. I must get all the tests and treatments, but then must wait patiently to see if they are effective. Waiting. It is so hard to do but it is what is asked of us. When I woke up yesterday morning one of my favorite praise songs popped into my mind.
"Strength will rise as we wait upon the Lord, we will wait upon the Lord, we will wait upon the Lord. Our God, you reign forever. Our Hope, our Strong Deliverer. You are the Everlasting God, the Everlasting God, you do not faint, you won't grow weary. You're the defender of the weak. You comfort those in need. You lift us upon on wings of eagles."
When I rest in this knowledge, life is a lot less confusing.
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12 comments:
good song. I love reading your blogs ... you give me hope and encouragement... you make me understand God in a practical way, ... to not take advantage of what I know about God, but how it is lived out!
I do like reading your blog. But it makes me reflect again on how we did not become more deeply acquainted when I lived in Redlands and how some things happen and some things do not happen. But I am encouraged by you and what God is doing in your life, as confusing as it all may be. Debbie S.
I can only imagine how hard the waiting processes is...it is hard for us to wait for your news as well! We all want answers and positive ones.
Thanks, Joyce, for reminding me too that we have to wait on God. I think that is the hardest - the waiting.
Interesting that your arms are smooth! Remember that Mom's itchy ears healed after she started chemo?
Jeanne
Oh Joyce, I'm so glad you are finding the joy even within the sadness! Try to live each day fully... and find His strength as you wait upon the Lord... (OK, Now you've got me humming that song! I'm going to drive Ken crazy with the humming again...can't get that praise out of my head.) I praise God for you , Joyce, and pray that He gives you enough of whatever you need. :) Love, Marsha
Joyce,
I asked Lois if she would share your blog with me and she did. I want you to know that we are praying for you here in Kalamazoo. Daily. And we will continue.
Thanks for sharing your thoughts and experiences, you are a gifted writer!
You also have a wonderful family, what a blessing that is.
You're blogs are so inspiring and your faith amazing!!
Jer. 33:6 "Nevertheless, I will bring health and healing to Joyce; I will heal Joyce and let her enjoy abundant peace and security." Im Him, Sarah Slayman
I think God wants to speak to me through your blog. I, too, am trying to find joy in the reality of a difficult life. Great comfort comes in knowing that God already knows the outcome and that we are in his will. Still, it is hard for my finite mind to grasp why any of this has to be in the first place. I vow to seek joy with you. It is a privilege to pray for you.
Oh, and every year is a "no bow" year around here!
Joyce.....Your attitude in the midst of this ugly disease inspires me. You inspire me. How is it that the one who is suffering the most speaks to those who aren't? It's only the Lord in you! What a blessing you are. Thank you. How do I get on your list of folks that are available to help you?
Joyce, your blog entries are inspiring. You are experiencing so much sadness right now yet reading your blog is like reading a devotional. God is using you...you are blessing many by sharing your thoughts.
Lois Smits
Hi Joyce,
Thanks for sharing your struggle so openly and honestly. I'm so sorry you're faced with such a battle. Please know that I am praying for you. I truly don't know the last time we've seen each other (such a huge family :), but I'm holding you close to my heart in prayer. Best of all, God is holding you in the palm of His hand. You're the apple of His eye.
Bev (Gritters) Roozeboom
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